William has had a busy week since our last post. On Monday the 9th, the docs decided to scope his airway, mainly because he is considered to have a "critical airway" (that is, highly constricted and difficult to intubate), which had put him at much greater risk during his emergency on the previous Thursday (May 5) and his re-intubation on Friday (May 6).
For the uninitiated: Anytime someone requires intubation, it's because they can't properly breathe on their own, but if you can't get a tube into their airway, well...that's a problem. ('Cuz, ya know, that whole breathing thing is kinda important.)
So the scope was done to see just how bad his airway was, and what we learned was what we had been afraid of: To keep him safe, he needed a tracheotomy.
So the bad news was that William needed a trach. The good news is that, hey, he can get a trach and that will make him a ton safer in the future. Difficult as it was to accept this new thing, we recognize that the good definitely outweighs the bad here.
The surgery was performed on Wednesday (the 11th). Everything went well, and a couple of days later, the doctors were able to remove him from the vent and he was switched to a trach collar for supplemental oxygen so that he could breathe on his own.
Earlier today, he had his first trach change, which is a bit of a milestone because it means that he is no longer considered a critical airway due to now having an artificial airway that provides quick access for a vent in the case of respiratory difficulties. The ENT surgeon confirmed that the site itself looks good. So...success!
(There was a little hitch, though, as during the trach change process, some mucus plugs shifted around and gummed up his lungs a bit, requiring that he be put back on the vent temporarily, but that doesn't appear to be a cause of great concern.)
All in all, things are (mostly) going according to plan and within the next day or so, William should be moving out of PICU and to the regular floor where we will begin learning how to manage and care for the trach.
So once again, it's time to adapt to a new normal, but in the long run William will be safer, and that's what matters.
For the uninitiated: Anytime someone requires intubation, it's because they can't properly breathe on their own, but if you can't get a tube into their airway, well...that's a problem. ('Cuz, ya know, that whole breathing thing is kinda important.)
So the scope was done to see just how bad his airway was, and what we learned was what we had been afraid of: To keep him safe, he needed a tracheotomy.
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| William = Trachtastic! |
The surgery was performed on Wednesday (the 11th). Everything went well, and a couple of days later, the doctors were able to remove him from the vent and he was switched to a trach collar for supplemental oxygen so that he could breathe on his own.
Earlier today, he had his first trach change, which is a bit of a milestone because it means that he is no longer considered a critical airway due to now having an artificial airway that provides quick access for a vent in the case of respiratory difficulties. The ENT surgeon confirmed that the site itself looks good. So...success!
(There was a little hitch, though, as during the trach change process, some mucus plugs shifted around and gummed up his lungs a bit, requiring that he be put back on the vent temporarily, but that doesn't appear to be a cause of great concern.)
All in all, things are (mostly) going according to plan and within the next day or so, William should be moving out of PICU and to the regular floor where we will begin learning how to manage and care for the trach.
So once again, it's time to adapt to a new normal, but in the long run William will be safer, and that's what matters.
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